This is a condensed version of the email I received from Jodi Thomas of Havelock, Connor's mom. Please read!
I'm writing about my 2 yr old son Connor who has Chiari l Malformation. From when Connor was a few weeks old, I knew something was different about him. He was a very unhappy baby. It was beyond colic. Many doctors saw him and he was dismissed.
In May 2012, Connor had a seizure. He went blue and lifeless. As my husband was on the phone with 911, I stared CPR. Upon ariving at the hospital in the ambulance, the doctors said his seizure was a fluke and probably would not happen again. Not even 24 hours later, another seizure. An MRI and a phone call in late September forever changed our lives.."Mrs. Thomas, your son has Chiari I Brain Malformation. Doctors had no clue of treatment, was he going to die, what could I do? I have been researching everyday to spread awareness..click the link below to find out more on Connor!
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